|
Last Updated:
03/20/13 03:45:45 PM |
|
Nevada
Central Cancer Registry |
|
|
|
Program Statement |
|
The goal of the Nevada
Central Cancer Registry (NCCR) is to gather
comprehensive, timely, and accurate data on the
incidences of cancer in Nevada.
Through the
Office of Public Health Informatics and Epidemiology,
the Registry provides statistical data for use by
epidemiologists, health researchers and others in the
medical and allied health professions. Information from
the Registry is intended to identify cancer risk,
evaluate cancer patient care, and characterize leading
trends in cancer incidence, survival, and mortality
among state residents. |
|
|
|
Authority |
|
Public Law 102-515, the
Cancer Registries Amendment Act, was enacted in 1992.
Through this Congress established the National Program
of Cancer Registries (NPCR) through the Centers for
Disease Control and Prevention. Through this Act, the
NPCR was established to fund and support the operation
of population-based, statewide cancer registries in
order to collect cancer data.
The Nevada Central Cancer
Registry (also referred to as the Statewide Cancer
Registry) is regulated by both
Nevada Revised Statutes (NRS) 457.230-457.280
and those regulations adopted by the State Board of
Health. This statute mandates the reporting of cancer in
the State of Nevada.
The Nevada Administrative Codes (NAC) 457.045-457.150 provides
authority requiring hospitals, pathology laboratories,
free-standing cancer clinics, long-term care facilities,
ambulatory surgery centers and physicians to report
cancer cases diagnosed and treated in Nevada to the
Statewide Cancer Registry.
The NCCR also operates
under the Standards set by the National Program of
Cancer Registries (NPCR) and the North American
Association of Central Cancer Registries (NAACCR). |
|
|
|
History of the
Registry |
|
The NCCR is a
population-based registry that maintains data on all
cancer patients within the State of Nevada. The Registry
began collecting cancer incidence data in 1979. In
1995, the NCCR began receiving funding from the NPCR
through the Centers for Disease Control and Prevention.
The Registry receives data
from hospitals, outpatient facilities and pathology
laboratories throughout the State of Nevada. The number
of reporting facilities increases each year as new
reporting facilities open and the Registry develops new
relationships. As a result of this and the state
population growth, the number of reportable cancer cases
also increases. The Registry reported over 12,200 new
cases for the 2008 diagnosis year. |
|
|
|
Services Provided |
The Nevada Central Cancer
Registry provides the following services:
- Case abstraction at hospitals with less than 100
beds (if
resources available).
- Processing cases and conducting quality assurance on
cases abstracted by hospitals and out patient
facilities.
- Receiving and processing reports from pathology
laboratories.
- Providing information on patients diagnosed in
Nevada who have residence in another state to states
with Data Exchange Agreements.
- Providing training to cancer registration personnel
in the State.
- In cooperation with the
Office of Public Health Informatics and Epidemiology,
provide statistical cancer data.
|
|
Data Quality |
|
The NCCR collects data on
all reportable cancers. In accordance with NPCR and
NAACCR Standards, the NCCR strives to achieve and
maintain 95% complete case ascertainment within 24
months of diagnosis date. The data is complied,
aggregated and submitted to federal agencies annually.
Once submitted, the Registry data is reviewed by each
diagnosis year for completeness, accuracy and
timeliness. Through NAACCR, registries are recognized
for meeting the highest standards of data quality with
Gold or Silver Standard Certifications each data year.
The NCCR has achieved Gold Standard Certification six
out of the last seven diagnosis years reported. With
over five consecutive years of data qualifying for Gold
Standard Certification, the NCCR’s data has been
included in the
United States Cancer Statistics
(USCS) and the Cancer in North America (CINA)
publications. |
|
|
|
Data Exchange |
|
The NCCR has agreements
with many central registries within the United States to
exchange cancer incidence data. These agreements allow
the NCCR and the named registry to exchange data
regarding their residents who have been diagnosed and/or
treated in another state. |
|
|
|
Reporting |
|
The
Nevada Report on Cancer
is intended to be published on a biannual basis with
special area reports published on a periodic basis. The
report for 2003 – 2007 is currently available online.
Information can also be accessed from the Cancer
Registry online through the
Bureau's Interactive Database System.
|
|
|
|
Data Requests |
|
To request to use data from the cancer registry for a research purpose, please complete request to use data held by the Nevada State Health Division for a research purpose or project activity
|
|
Contacts - Cancer Registry |
Nevada State Health Division
Bureau of Health Statistics, Planning and Emergency
Response (HSPER) |
Donnamarie Milazzo, Program Manager
Nevada Central Cancer Registry
4126 Technology Way, 2nd Floor
Carson City, NV 89706
Phone: (775) 684-3221
Fax: (775) 684-5999
Email
dmilazzo@health.nv.gov |
|
National Cancer Observances Calendar |
|
For a list of National Cancer Observances, see Cancer Observance Calendar.
|
|
|